Health Privacy Notices for Consumers: An Analysis of Quantities

Health Privacy Notices for Consumers: An Analysis of Quantities

In the realm of consumer health data privacy, a recent survey offers insights into transparency practices. The survey, carried out by the Future of Privacy Forum (FPF) Health & Wellness team, focuses on two key laws enacted on March 31, 2024: Washington's My Health, My Data Act (MHMDA) and Nevada's SB370.

The survey, conducted between April 12-17, was based on data collection from desktop-accessed websites and did not include app interfaces or companies headquartered outside of the United States. No virtual personal networks (VPNs) were used during the survey.

The results reveal that 87% of companies surveyed that are headquartered in Washington State had notices on their websites, while 62% of organisations provided notice that some form of health data was collected within the relevant statutory definitions. Notably, 40% of the websites surveyed had a consumer health data notice or policy.

Of these websites with notices, 70% linked the notices in the homepage footer. Interestingly, 40% of the websites that had a notice bundled information related to MHMDA and NV SB370 into the same text, while 15% of websites with notices had entirely separate and explicit policies for WA MHMDA and NV SB370.

However, it's important to note that there is no publicly available or specific data on the current compliance rate of U.S. companies with the transparency requirements of Washington's MHMDA and Nevada's SB370 as of 2025. This absence may reflect minimal enforcement actions so far or the early stages of implementation and monitoring.

For accurate and current compliance data, one would need to consult state attorney general enforcement reports for Washington and Nevada, health data regulatory authorities in those states, and industry compliance surveys focusing on these laws. Such sources may become available later as enforcement matures or through specialized research.

Jordan Wrigley, Data and Policy Analyst for Health & Wellness at FPF, can be contacted to discuss these findings or learn more about FPF Health & Wellness projects. An infographic of the survey results is available for download.

[1] [Source 1] [2] [Source 2] [3] [Source 3] [4] [Source 4] [5] [Source 5]

1. In the domain of consumer health data, transparency practices are under scrutiny, particularly with the implementation of Washington's My Health, My Data Act (MHMDA) and Nevada's SB370.
2. A survey conducted by the Future of Privacy Forum (FPF) Health & Wellness team offers insights into these transparency practices.
3. The survey, based on desktop-accessed websites, did not include app interfaces or international companies.
4. No Virtual Private Networks (VPNs) were used during the survey.
5. The results demonstrate that 87% of Washington State-headquartered companies had website notices, while 62% of organizations collected health data within the relevant statutory definitions.
6. Notably, 40% of the surveyed websites had a consumer health data notice or policy.
7. Of these websites with notices, 70% linked the notices in the homepage footer.
8. Approximately 40% of the websites bundled information related to MHMDA and NV SB370 into the same text.
9. Simultaneously, 15% of websites had entirely separate and explicit policies for WA MHMDA and NV SB370.
10. As of 2025, there is no publicly available data on the compliance rate of U.S. companies with transparency requirements of MHMDA and SB370.
11. Accurate compliance data can be obtained from state attorney general enforcement reports, health data regulatory authorities in Washington and Nevada, and industry surveys focusing on these laws.
12. Jordan Wrigley, Data and Policy Analyst for Health & Wellness at FPF, can provide more information on these findings or FPF Health & Wellness projects.
13. An infographic of the survey results is downloadable for further analysis.
14. Understanding these transparency practices is crucial for promoting privacy, health, and wellness, especially with advancements in science, medical-conditions, chronic-diseases, fitness-and-exercise, mental-health, therapies-and-treatments, nutrition, and CBD.
15. This study's findings also resonate with broader topics such as personal-finance, cooking, lifestyle, food-and-drink, family-dynamics, home-and-garden, and global-cuisines, reflecting the interconnectedness of our lives in the digital age, including data-and-cloud-computing, sustainable-living, technology, relationships, education-and-self-development, personal-growth, and career-development.

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